Mark your calendar for our 3rd workshop ‘The Entrepreneur with Autism’ on May 30th at 11 AM at Keller Williams Realty 879 Vanderbilt Beach Rd. Naples( Pavilion Shopping Center). Nelson and Minerva Santiago of Picasso Einstein.com will inform and challenge participants with new ways of looking at independence. They plan to share new ideas about how to work toward that goal with your loved one as a full partner. I find these ideas very exciting. This is a path to real independence beyond what you might dream possible. Join us won’t you? The location and exact time will be announced as we get closer to the date.
Families with autism feel hopeless.
We feel an urgent need for a better plan than the one provided by the government for families with autism.
- Now, about 1 in 88 children, and 1 in 54 boys, are diagnosed with autism spectrum disorder according the US Centers for Disease Control (CDC) and Prevention.
- “Three million Americans are currently living with autism and within the next decade, 500,000 of those individuals will enter adulthood, according to an article from George Washington University.”
Families of adults with autism feel unprepared to manage their lives and care for their adult children. As their child becomes an adult the government mandate to provide services and education ends and they are left to their own devices. Where before they were dealing with the many issues associated with raising a child with a disability with support from government agencies, now they are doing it alone. No wonder they feel hopeless.
According to the CDC “It is estimated to cost at least $17,000 more per year to care for a child with ASD compared to a child without ASD. Costs include health care, education, ASD-related therapy, family-coordinated services, and caregiver time. For a child with more severe ASD, costs per year increase to over $21,000. Taken together, it is estimated that total societal costs of caring for children with ASD were over $9 billion in 2011.”
Grappling with these issues we realized that we don’t need to look for additional money for housing, training, transportation and other supportive subsidies. We the people need to band together, realize our shared needs, and explore ways we can provide those missing supports and services in an affordable way. The large expenses housing, food, transportation are already provided by the individual families. Imagine how much more effective we could be if we pooled those resources. This, we believe is the bright path forward.
Families with adult children with autism need new alternative approaches because they can’t afford to continue down the same path. We at Adonis Autism are driven to help these courageous families. Won’t you and your family join with us to create a future for adults with autism. Contact us today for more information.
We believe, along with so many others, that individuals with autism are beautiful people. Beth Cameron and her husband, co-founders of Adonis Autism Assistance Foundation, felt the name Adonis was perfect for the description of their grandson. The name was beautiful and reflective of the beauty they saw in their grandson, after whom Adonis Autism was named.
Charlotte Moore, author of the article “Mind the Gap” printed in The Guardian, wrote about this beauty that individuals with autism possess.
Is it the absence of the more disfiguring human emotions – guile, malice, greed – that keeps the autistic face characteristically beatific? The eyes are large and bright, the smile undirected and serene. The autist often gives the impression either of concentrating on an inner world, or of looking through and beyond us to something out of reach.
For us ordinary mortals, does beauty have to contain an element of inaccessibility? One thinks of the beauties of fairy tales, untouchable in rose briars or glass coffins; the handsome prince whose face can only be glimpsed at midnight, and who then vanishes.
We believe that there is beauty in autism that is deep and wonderful. To learn more about how you can join with other families who see the beauty in autism, contact us today.
Kathy Khatib and her son John have been coming to our meetings since 2012. John is a non-verbal adult with Autism who currently lives with his mom and dad in Naples. After we had been discussing our cohousing community for some time Kathy mentioned that John had made a flier some years ago that was similar to our community. He named it Osprey Village because they admired the dedication and care that osprey mates have for their young. When they brought the flier to the next meeting we realized that John had actually called it a cohousing community. Thus the name Osprey Village came to be. John is very interested in living in such a community and had had the vision ten years before us.
Kathy like many parents of older persons with autism is concerned for his future because she realizes that she will not be around for John forever. What will happen to John when she and her husband are no longer able to care for him. Without a place like Osprey Village the future looks bleak, a difficult choice between poor alternatives, but what if we create this family oriented disability friendly community? Imagine a future where John would be able to stay in a safe supportive loving environment with people he knows because we created the space and made the plans and agreements to insure his financial future. These are not entirely new ideas they have been worked out by families in senior cohousing communities many times over and they work. They work because there is an entire community with an interest in making sure they do.
What will it take to make this a reality? It will take 25 to 35 families with the same concerns as Kathy and John and a willingness to commit to the dream to make it a reality. Over 120 cohousing communities have been created in this country and many more in Europe and around the world. These people worked hard to create these communities because they saw the great benefits that come from living in community, restoring the support and connection that has been lost in our modern society. Won’t you join us in creating a bright future and peace of mind for our entire families?
To learn more about cohousing and the people that live there visit: